Pregnancy and Infant Loss Awareness Month: Your guide to resources from a therapist in Madison

“A wife who loses a husband is called a widow. A husband who loses a wife is called a widower. A child who loses his parents is called an orphan. There is no word for a parent who loses a child. That’s how awful the loss is.”

— Ronald Reagan

October is Pregnancy and Infant Loss Awareness Month. Here are some local events around Madison, WI to honor the babies gone too soon. At the end of the list are some options for ongoing virtual support on a national level.

October 6th- Fundraiser at Octopi Brewing Company for the Hope and Loss Clinic

October 7th- Forever in our Hearts Remembrance Day Walk and Ceremony

October 8th- Morning Coffee with the Alana Rose Foundation

October 11th 12-1 p.m. Free Miscarriage virtual Support group hosted by Julie from Kull Counseling (therapist Madison)

October 12th Pregnancy and Infant Loss Remembrance Day - Advocate Aurora Oshkosh 2023 5-7 p.m.

October 15th Wave of Light at 7 p.m.

October 19th 6:30-8:30 p.m. The Bereaved Parents of Madison Hosts and in person support group

Other virtual options for support include Postpartum International and Return to Zero.

For more information about local support for Pregnancy or Infant Loss in Wisconsin. Email Julie C Kull, LCSW.

Pregnancy and Infant Loss Awareness 2022

“I carry your heart with me, I am never without it.” - E.E. Cummings

October is Infant and Pregnancy Loss Awareness Month. October 15th is Infant and Pregnancy Loss Awareness day. So many emotions come up this time of year. Some of you may be apprehensive every year as fall approaches- you may notice feeling more irritable and having less capacity for other things. For some of you this may be a time of peace-peace in remembering your loved one and reconnection. For others this may bring up fear or anxiety. For others this may be a time of deep sadness and grief. However you are feeling about this month or day is okay. For those of you looking for a way to engage with others that have experienced a pregnancy or infant loss here are some options.

October

1st: Harley’s Hustle in person or virtual. Monroe, WI

2nd: Sunday, October 2nd, Forever in our Hearts Remembrance Day. Madison, WI

6th: Free virtual miscarriage support group October 6th. Madison, WI hosted by Julie Kull, LCSW (therapist Madison).

15th: 7 p.m. your local time on October 15th, Wave of light. Light a candle at 7 p.m. to honor your baby. Nationally

20th: October 20th, 7:30 p.m. Bereaved Parents of Madison virtual support group. Madison, WI

To learn more about the miscarriage support group click here.

Resources for Pregnancy after a Loss in Madison, Wisconsin - Doula

Pregnancy after loss support Madison Alli Ryan

For this month’s blog post I wanted to take this opportunity to talk to you about how a doula can help with the birth process. It is common when you’re pregnant after a loss to feel an increased amount of anxiety about giving birth. A doula can help with the emotional and physical side of labor.

For this article I interviewed Alli Ryan from Lumos

Julie: So Alli what is a doula?

Alli: A doula provides physical, emotional and informational support. Most folks think that is just to a pregnant person thats giving birth but a doula can extend into birth and postpartum. At a birth we may help you with coping strategies, with positions, we’re going to help you with if your planning a hospital birth so we can navigate some of the hospital systems stuff and know what are your choices, but we can do those same things in pregnancy. We are not medical care providers we don’t give medical advice. We are not midwives- midwives are medical and emotional. As our doula our role is just informational, physical and emotional support.

Julie: How can you help support someone that pregnant after a loss?

Alli: Leaning into that emotional support peace. All people come into birth with a story and sometimes you know what your story is because you have had early pregnancy loss or loss at any point so those emotions are really big. It is finding a safe space. The hormone in labor is oxytocin and oxytocin is the hormone of feeling safe and supported. The way our brain is structured the fear hormones actually compete with our labor hormones. To be able to have someone to set you up to feel safe in not only pregnancy but labor really does allow those hormones to flow a little bit better. It is someone that understands you. We can help you move the staff through so you don’t have to tell your story over and over again. We help you to know what your options are. There can be options available specific to pregnancy after loss such as labor positions that might bring up a lot of feelings for you. We find their are stages along the way like oh I did not realize I had put a lot of energy into getting past 20 weeks or in that ultrasound in our last pregnancy is when things got hard. It is helping you move through some of those milestones. Usually folks that want doula support want all of their feelings honored. They also want information, support and facts.

Julie: Are their commonalities that you see in the labor and delivery room for people pregnant after a loss?

Alli: Moving through pregnancy their are these milestones that you have to get through like I knew I was going to have a hard time getting through that. We can help you think about those things ahead of time, move through those things and coming up with a plan. Sometimes I will find early labor can feel like some of those sensations of an early pregnancy loss and so having a person you can call and say I am having really hard feelings, we aren’t necessarily going to be there to fix them and this is where mental health providers can help with tools but we can be those safe people to help remind you of what your tools are when all of that kind of goes out the window. We can help you bring in your past losses so if you named your babies or put some sort of energy or labels or icons or symbols or teddy bears we can normalize that. That is very normal. It is very normal to help you feel connection in those experiences.

I also think most folks don’t understand how hard the postpartum is.

There can be a big huge wave of grief that comes in waves because you start to realize what you lost in a way that is like in your arms. Their can be a lot of complicated feelings. To lean into the support team that you have created, those are all really important things to do.

Julie: That’s such a good point. I also feel that people are hesitant to have a doula in the room because they are very private and it can be hard enough to be in front of your medical team. Can you speak to that?

Alli: We hear that from a lot from all folks not just from people pregnant after a loss. What we hear now is that a doula actually hear that a doula helps keep things private. We aren’t a stranger thats a weirdo in the room. We’ve also been to a lot of births. If you guys need us to disappear for a while because you need a moment we are going to know that without you even saying it and we are going to kind of blend into the background. We’re also going to in particular in a hospital environment we are going to help that hospital feel more private. We may be able to communicate to stay hey they are just going to have a little time together and can we keep folks out and help you ask for that as a patient. Advocate for what you need. Helping that environment feel like your nest, this is your experience and not a sterile hospital room. There are simple things we can do like turning down the lights and bringing twinkle lights and having is smell different and thinking about your music. But there is also a lot that just comes with our presence a doula in and of itself is a communication tool that we want this labor to take into account our emotions. We want it to feel like an individual experience. We want to understand what is happening around us and we want support. Just having a doula present makes that experience a little more private.

Julie: Do you want to speak why you are interested in working with pregnancy after loss?

Alli: I had been a doula for a couple of years, my husband and I hadn’t had any complications getting pregnant. We seemed to get pregnant very easily but we weren’t able to stay pregnant very easily. My big rainbow, we use the terminology rainbow at our house, pregnancy after loss, was born and then got pregnant again and then almost term we had our daughter who was born via stillbirth. She is a huge part of our life, her name is Vivian and pretty quickly realized that was going to transform the birth work and postpartum work that I was already doing. So I come to doula work in a way that is believing and trusting that people can figure out there way through it but that we need support to figure our own way through. I don’t come with this perspective of this is how I did it, I come with the perspective that is more I understand how hard this is to do this, there are a lot of great professionals in our community that can understand that whether or not they have had loss, I can understand it in a way that is a little bit different. So, right it transformed my work as a doula and then really did. We also went onto to have another brother, so another rainbow and my work was transformed.

Julie: Thank you for sharing that and willing to be vulnerable. If someone is interested in working with you how can they get in contact with you?

Alli: So I own a business called Lumos you can go to our website at welcometolumos.com. We work with other doulas all who have some level of experience working with all different sorts of families of shapes and sizes. Those that have experienced loss as well.

October is pregnancy and infant loss awareness month

miscarriage rock.jpg

In 1988 Ronald Reagan declared October as Pregnancy and Infant loss awareness month http://nationalshare.org/october-awareness/

“When a child loses a parent, they are called orphans.

When a spouse loses a partner, they are called a widow or widower.

When a parent loses a child, their is not a word to describe them.” -Ronald Reagan

Every October we take a moment to honor babies gone too soon. For many this may be a very difficult time of year, but can also be a time of year for healing.

Here in Madison we are fortunate to have some great resources for those who have suffered pregnancy or infant loss.

October 2- Lunch and Learn about Pregnancy after a loss at Madison Area Parents Support

11:30-12:30 p.m.

Psychotherapist Julie C Kull, LCSW will lead a lunch and learn discussing education and coping skills for pregnancy after loss.

https://www.madisonareaparentsupport.org/calendar

402 E Washington Avenue at MAPS Base Camp

October 3- Kull Counseling Miscarriage Support Group

5:30-6:45 p.m.

This support group is run by psychotherapist Julie C Kull, LCSW. The purpose of this group is to provide a safe place to share your loss and connect with others in the early loss community. We will be painting rocks to honor your babies in October.

720 Hill Street, Madison, WI

To register contact Julie at 608.239.4807 or julie@kullcounselingmadison.com

October 17- Bereaved Parents of Madison Support Group

7:30pm (Doors open at 7:20pm)
St Mary's Hospital in Conference Bay 4
700 South Park Street 
Madison, WI

October 19- Remembrance Day hosted by Mikayla’s Grace

“This Remembrance Day is to honor families who have lost babies through pregnancy, stillbirth, or in early infancy. This 9th Annual Forever in Our Hearts Remembrance Day is being planned by local bereaved parents and Madison area non-profit Mikayla's Grace.”

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