Pregnancy and Infant Loss Awareness Month: Your guide to resources from a therapist in Madison

“A wife who loses a husband is called a widow. A husband who loses a wife is called a widower. A child who loses his parents is called an orphan. There is no word for a parent who loses a child. That’s how awful the loss is.”

— Ronald Reagan

October is Pregnancy and Infant Loss Awareness Month. Here are some local events around Madison, WI to honor the babies gone too soon. At the end of the list are some options for ongoing virtual support on a national level.

October 6th- Fundraiser at Octopi Brewing Company for the Hope and Loss Clinic

October 7th- Forever in our Hearts Remembrance Day Walk and Ceremony

October 8th- Morning Coffee with the Alana Rose Foundation

October 11th 12-1 p.m. Free Miscarriage virtual Support group hosted by Julie from Kull Counseling (therapist Madison)

October 12th Pregnancy and Infant Loss Remembrance Day - Advocate Aurora Oshkosh 2023 5-7 p.m.

October 15th Wave of Light at 7 p.m.

October 19th 6:30-8:30 p.m. The Bereaved Parents of Madison Hosts and in person support group

Other virtual options for support include Postpartum International and Return to Zero.

For more information about local support for Pregnancy or Infant Loss in Wisconsin. Email Julie C Kull, LCSW.

How therapy can help after a miscarriage

It is estimated that 1 in 4 women will have a miscarriage. You may be feeling like if it is so common that you “should” be able to deal with it on your own or that it will not impact you or maybe even that it isn’t a big deal. For most people it is a big deal and it can be pretty hard to cope with.

Statistics suggest that 30-50% of women experience anxiety and 10-15 percent experience depression up to 4 months following a loss according to FIGO.

NIHR discusses a study that found 1 in 3 women show signs of PTSD after a miscarriage.

So why is this important? We know that the mental health of the mother can greatly impact the child even in pregnancy. Their are many studies that discuss the impact of the mental well being of the mom in pregnancy and the long term impact it may have on the child’s physical, emotional and cognitive development. Many women will become pregnant again soon after a miscarriage but long before anxiety and/or depression symptoms have subsided. While it is common to think getting pregnant again after a loss will decrease anxiety it often does not. Seeking therapy after a miscarriage can impact your ability to cope and decrease anxiety/depression in subsequent pregnancy.

How can therapy help?

Normalize- Many of the feelings you may be feeling are common for those that have had a miscarriage. Knowing that your feelings are okay and that there are ways to cope. Knowing that it is hard to have a miscarriage, that women do seek therapy and sometimes medication after a loss and that most people do not just “get over it”, even if it is common.

Validate- I am just going to say it- people are sooo uncomfortable with grief. You may be finding it really hard to express your feelings with family and friends. This can be even harder with a pregnancy loss that it can be when losing a friend or a grandparent. Often the people in your life may have not had an attachment or even known about the pregnancy before. It can be hard for people to relate to what we call an ambiguous loss. It can be really healing to have your feelings acknowledged and validated.

Help you to identify healthy ways to cope with grief- Unfortunately trying again or gods willing it or at least you know you can get pregnant are not the kind of healthy ways you need to deal with grief. But, acknowledging your feelings, finding support, creating a container for your grief, nurturing yourself, honoring your loss, making meaning and acceptance can be.

Set boundaries and ask for what you need in relationship- If you are in a relationship you probably are already starting to realize that you are your partner are grieving this differently. This also applies to family members that may need a gentle reminder on what you need to feel supported or the acknowledgement that this person in your life might not have the ability to support you through this for whatever reason and ouch can that really hurt.

Understand the grief and trauma around pregnancy loss- Understanding a framework for grief and what you have or might experience can help. Looking at your loss and understanding the trauma that can be experienced can also be really helpful in understanding how it has impacted you and what makes it difficult to process. Working with those triggers, increasing your window of tolerance and helping you to feel more regulated can make a difference.

If you still aren’t sure..find out more or schedule a free 15 minute consult here with a therapist Madison.

The emotional toll of a Missed Miscarriage

Having a miscarriage can be devastating. You may know signs and symptoms to look for  when your body may be starting the process of miscarriage and look for those throughout the first trimester. However, you may not know  that you can suffer a loss, but the body may not show signs of a miscarriage. This is referred to as a missed miscarriage.

Having a missed miscarriage can add an extra layer to the grief and trauma around early pregnancy loss. According to www.progny.com, “A missed miscarriage, also known as a missed abortion or a silent miscarriage, occurs when a fetus is no longer alive, but the body does not recognize the pregnancy loss or expel the pregnancy tissue. As a result, the placenta may continue to release hormones, so you may continue to experience signs of pregnancy.” A missed miscarriage can be devastating when there has not been any symptoms, and often, these symptoms may be typical of a healthy pregnancy - i.e., fatigue, nausea, etc. For most of you, you will find out about missed miscarriages when you go into your doctor’s office for your first appointment. One of the happiest days of your life (when you get to see your baby for the first time) can quickly turn to one of your saddest (finding out your baby is no longer alive).

For many carrying partners this can feel like your body has failed you, twice. Once, that your body was not able to carry a baby to term, and twice, because if your pregnancy was to end in a miscarriage why did your body not do this naturally? This can lead to a strong mistrust in your body that may lead to abuse or neglect of yourself. This also can present in a subsequent pregnancy causing anxiety and depression or ptsd. It can feel like your body is not a safe place for a healthy pregnancy after a missed miscarriage.

Having a missed miscarriage also leads you to what can be a difficult and painful decision of deciding how to manage the miscarriage process. While some people will wait to see if their body can complete the miscarriage on its own, most doctors will encourage you to schedule an intervention to manage the miscarriage process for health concerns.

After a decision has been made it can still be weeks to months to complete the process and symptoms of pregnancy may linger for months after that.

It is common to feel many different things, some common ones being shock, anger, denial, grief, shame, jealousy. You may feel a loss of control. It can be helpful to get connected to support during a missed miscarriage whether that is a support group, or a therapist that can help you talk through your decision, feelings and support you through the process and after a loss. Having a miscarriage can be isolating, finding support can make a huge difference.

Finding ways to be present in your body can be an important part of your process. Whether this is through grounding, centering, breathe work or exercise, movement or dance, it is important to be in your body and find healthy ways to reconnect with your body.

For more resources on miscarriage and to learn about the miscarriage support group with a therapist Madison, sign up for my monthly newsletter here. https://www.kullcounselingmadison.com/

Pregnancy after a loss meditation script

Being pregnant after a loss can come with an increase of anxiety. Meditation can be a great way to get in your body, become aware of how you feel, and to stay present. Recently I recorded a meditation which can be found on the pregnancy after loss page on my website.

Here is the script:

Pregnancy after loss meditation-

I invite you to get into a comfortable position either with your feet on the floor or lying down. Rest your hands by your side or in your lap and begin to close your eyes.

Today we are going to be talking about pregnancy after a loss. There are many thoughts that can come up for those pregnant after a loss.

I invite you today to acknowledge your thoughts and just notice them, without judgment.  Our thoughts are not facts.

There is no wrong way to meditate. Meditation takes practice and it is okay if your mind wanders, if you notice your thoughts wandering simply let them go and bring your awareness back to your breath.

We will begin by bringing awareness into the breath. Inhale to the count of 3 and exhale to the count of 4. If at any moment today something feels uncomfortable in your body please skip it. We will continue to breath in to the count of 3 and out to the count of 4 bringing attention to our breath.

Breath in and out

In and out

We will begin by bringing awareness into our body. Starting by bringing awareness into our head, notice how your forehead, your eyes, your mouth, your cheeks your ears are feeling, notice any sensations without judgment.

Now bring your awareness down your head to your neck and shoulders, simply noticing how you are feeling.

Now draw your attention to your chest and back and simply notice. Continue to breath into the count of 3 out to the count of 4.

Bring your awareness into your arms and then your hands. Notice if they feel heavy, light, warm or cold. Simply notice how they are feeling at this very moment.

Continue down your body now into your lower back, stomach and hips noticing any sensations. Continue traveling down into your legs and toes continuing to breath and notice any sensations.

Take a deep breath in through you head and breath out through your toes.

We will now return to our heart and our stomach. If it feels okay to you bring one hand to your heart and another to your belly.

Continue to breath in to the count of 3 and out to the count of 4.

Bring breath and awareness to your heart and your belly. Your body is strong. Your body can grow a healthy baby. You can hold love in your heart for both your loss and for the new baby growing inside of you.

Whatever emotions you are feeling inside or okay. Emotions are not good or bad, they just simply are. Notice your emotions without judgment and bring your awareness back to your breath.

Continue to breath. If you have an intention for your pregnancy you can say it silently now.

As we start to return now to the room know that your baby is loved, that your body is strong and capable of caring for this baby.

Know that meditation is available whenever you need it. You can return to these feelings of calm whenever you need to.

I will count back from 5 and then we will return to the room.

5, 4, 3 begin to bring movement back to your body, 2 bring awareness back to the room 1 open your eyes.

For more information about pregnancy after a loss please contact Kull Counseling, LLC at 608.239.4807 or julie@kullcounselingmadison.com

Resources for Pregnancy after a Loss in Madison, Wisconsin - Doula

For this month’s blog post I wanted to take this opportunity to talk to you about how a doula can help with the birth process. It is common when you’re pregnant after a loss to feel an increased amount of anxiety about giving birth. A doula can help with the emotional and physical side of labor.

For this article I interviewed Alli Ryan from Lumos

Julie: So Alli what is a doula?

Alli: A doula provides physical, emotional and informational support. Most folks think that is just to a pregnant person thats giving birth but a doula can extend into birth and postpartum. At a birth we may help you with coping strategies, with positions, we’re going to help you with if your planning a hospital birth so we can navigate some of the hospital systems stuff and know what are your choices, but we can do those same things in pregnancy. We are not medical care providers we don’t give medical advice. We are not midwives- midwives are medical and emotional. As our doula our role is just informational, physical and emotional support.

Julie: How can you help support someone that pregnant after a loss?

Alli: Leaning into that emotional support peace. All people come into birth with a story and sometimes you know what your story is because you have had early pregnancy loss or loss at any point so those emotions are really big. It is finding a safe space. The hormone in labor is oxytocin and oxytocin is the hormone of feeling safe and supported. The way our brain is structured the fear hormones actually compete with our labor hormones. To be able to have someone to set you up to feel safe in not only pregnancy but labor really does allow those hormones to flow a little bit better. It is someone that understands you. We can help you move the staff through so you don’t have to tell your story over and over again. We help you to know what your options are. There can be options available specific to pregnancy after loss such as labor positions that might bring up a lot of feelings for you. We find their are stages along the way like oh I did not realize I had put a lot of energy into getting past 20 weeks or in that ultrasound in our last pregnancy is when things got hard. It is helping you move through some of those milestones. Usually folks that want doula support want all of their feelings honored. They also want information, support and facts.

Julie: Are their commonalities that you see in the labor and delivery room for people pregnant after a loss?

Alli: Moving through pregnancy their are these milestones that you have to get through like I knew I was going to have a hard time getting through that. We can help you think about those things ahead of time, move through those things and coming up with a plan. Sometimes I will find early labor can feel like some of those sensations of an early pregnancy loss and so having a person you can call and say I am having really hard feelings, we aren’t necessarily going to be there to fix them and this is where mental health providers can help with tools but we can be those safe people to help remind you of what your tools are when all of that kind of goes out the window. We can help you bring in your past losses so if you named your babies or put some sort of energy or labels or icons or symbols or teddy bears we can normalize that. That is very normal. It is very normal to help you feel connection in those experiences.

I also think most folks don’t understand how hard the postpartum is.

There can be a big huge wave of grief that comes in waves because you start to realize what you lost in a way that is like in your arms. Their can be a lot of complicated feelings. To lean into the support team that you have created, those are all really important things to do.

Julie: That’s such a good point. I also feel that people are hesitant to have a doula in the room because they are very private and it can be hard enough to be in front of your medical team. Can you speak to that?

Alli: We hear that from a lot from all folks not just from people pregnant after a loss. What we hear now is that a doula actually hear that a doula helps keep things private. We aren’t a stranger thats a weirdo in the room. We’ve also been to a lot of births. If you guys need us to disappear for a while because you need a moment we are going to know that without you even saying it and we are going to kind of blend into the background. We’re also going to in particular in a hospital environment we are going to help that hospital feel more private. We may be able to communicate to stay hey they are just going to have a little time together and can we keep folks out and help you ask for that as a patient. Advocate for what you need. Helping that environment feel like your nest, this is your experience and not a sterile hospital room. There are simple things we can do like turning down the lights and bringing twinkle lights and having is smell different and thinking about your music. But there is also a lot that just comes with our presence a doula in and of itself is a communication tool that we want this labor to take into account our emotions. We want it to feel like an individual experience. We want to understand what is happening around us and we want support. Just having a doula present makes that experience a little more private.

Julie: Do you want to speak why you are interested in working with pregnancy after loss?

Alli: I had been a doula for a couple of years, my husband and I hadn’t had any complications getting pregnant. We seemed to get pregnant very easily but we weren’t able to stay pregnant very easily. My big rainbow, we use the terminology rainbow at our house, pregnancy after loss, was born and then got pregnant again and then almost term we had our daughter who was born via stillbirth. She is a huge part of our life, her name is Vivian and pretty quickly realized that was going to transform the birth work and postpartum work that I was already doing. So I come to doula work in a way that is believing and trusting that people can figure out there way through it but that we need support to figure our own way through. I don’t come with this perspective of this is how I did it, I come with the perspective that is more I understand how hard this is to do this, there are a lot of great professionals in our community that can understand that whether or not they have had loss, I can understand it in a way that is a little bit different. So, right it transformed my work as a doula and then really did. We also went onto to have another brother, so another rainbow and my work was transformed.

Julie: Thank you for sharing that and willing to be vulnerable. If someone is interested in working with you how can they get in contact with you?

Alli: So I own a business called Lumos you can go to our website at welcometolumos.com. We work with other doulas all who have some level of experience working with all different sorts of families of shapes and sizes. Those that have experienced loss as well.

October is pregnancy and infant loss awareness month

In 1988 Ronald Reagan declared October as Pregnancy and Infant loss awareness month http://nationalshare.org/october-awareness/

“When a child loses a parent, they are called orphans.

When a spouse loses a partner, they are called a widow or widower.

When a parent loses a child, their is not a word to describe them.” -Ronald Reagan

Every October we take a moment to honor babies gone too soon. For many this may be a very difficult time of year, but can also be a time of year for healing.

Here in Madison we are fortunate to have some great resources for those who have suffered pregnancy or infant loss.

October 2- Lunch and Learn about Pregnancy after a loss at Madison Area Parents Support

11:30-12:30 p.m.

Psychotherapist Julie C Kull, LCSW will lead a lunch and learn discussing education and coping skills for pregnancy after loss.

https://www.madisonareaparentsupport.org/calendar

402 E Washington Avenue at MAPS Base Camp

October 3- Kull Counseling Miscarriage Support Group

5:30-6:45 p.m.

This support group is run by psychotherapist Julie C Kull, LCSW. The purpose of this group is to provide a safe place to share your loss and connect with others in the early loss community. We will be painting rocks to honor your babies in October.

720 Hill Street, Madison, WI

To register contact Julie at 608.239.4807 or julie@kullcounselingmadison.com

October 17- Bereaved Parents of Madison Support Group

7:30pm (Doors open at 7:20pm)
St Mary's Hospital in Conference Bay 4
700 South Park Street 
Madison, WI

October 19- Remembrance Day hosted by Mikayla’s Grace

“This Remembrance Day is to honor families who have lost babies through pregnancy, stillbirth, or in early infancy. This 9th Annual Forever in Our Hearts Remembrance Day is being planned by local bereaved parents and Madison area non-profit Mikayla's Grace.”

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